May 2019 - Tripping On Air

Month: May 2019

5-Ways-Hope-Can-Suck-When-You-Have-MS

5 Ways Hope Can Suck When You Have MS

Make a wish and then prepare to get burned. The problem with hope and MS After a particularly dismissive appointment with my interim, now former,

May 22, 2019 • 38 Comments

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Happy Advent Calendar Day to those who celebrate ✋ 📆 I’m spending the next 24 days with treats from @stubbechocolates 🧑‍🎄

If you’re looking to spoil yourself or someone you love make sure to check out my gift guide (link in bio). There are massive giveaways this year and you can enter ONCE A DAY until Dec 13 to score some sick stuff from brands like @ailledesign @cadenseadaptive @fums.now @alignedasdesignedcane @prairievelo @cheekbonebeauty 🤩 🌲 🎁 #thisIsMS

It’s here and it’s spectacular 🤩 #thisIsM

It’s here and it’s spectacular 🤩

#thisIsMS #giftGuide

@cadenseadaptive @fums.now @ailledesign @cheekbonebeauty @alignedasdesignedcane @prairievelo @izadaptive

#sponsored #Sanofi_partner I’ve been travelling

#sponsored #Sanofi_partner I’ve been travelling my whole life—I love visiting new places, trying new restaurants and seeing the sights of a city like New York 🍎 🤩

Travelling looks different as my MS has progressed over the years, because there’s always #MoreToTheStory

I have to be mindful of my limits and have realized that it’s okay to ask for help, even when my symptoms can seem invisible.

I am my own best advocate while navigating the challenges of living with MS, and that includes making time and space for the things that I love even as my disability progresses.

Check out the link in my bio to learn more from @sanofi about the important discoveries in MS that might explain why some symptoms get worse over time despite a lack of relapses.

#thisIsMS #MS #MSawareness

Happy Hump Day, Trippers. What are you blowing off

Happy Hump Day, Trippers. What are you blowing off today?

#thisIsMS

Today’s infusion was only indirectly due to MS.

Today’s infusion was only indirectly due to MS. 🤔 Years of IV steroids for relapses caused me to develop osteoporosis in my early 40s and now I am receiving therapy to keep my prematurely old lady bones from turning to actual dust.

Get your bone scans, Trippers. 💀 #fallsRisk #thisIsMS and I guess #thisIsOsteoporosis too

PS according to my hat, it’s also Bring Your Dog To Your Infusion Day 🤦‍♀️ 🐶

Tripping on Air Gift Guide and (massive) giveaways

Tripping on Air Gift Guide and (massive) giveaways 🤩 COMING SOON! #thisIsMS

Stand, sit, walk, roll. Do whatever tf you need to

Stand, sit, walk, roll. Do whatever tf you need to live the life you wanna live. #thisIsMS

@katehewko @rollzint @ailledesign @roncypacks

Daydreaming about finding my upcoming memoir Fallo

Daydreaming about finding my upcoming memoir Fallosophy on the shelves of @shakespeareandcoparis the next time I’m in town. 📖 #thisIsMS 🖤

The Latin Quarter isn’t super accessible but the staff at S & Co were quick to pull out a ramp and help me navigate this amazing historic bookstore.